CCHS kids are cuter than the rest!

Considering how rare Lacy's syndrome is (about 400 people worldwide), you can imagine that there are not many local CCHS playgroups for our family to join. Well, there is one local playgroup... unfortunately, it's just us! Often times it can become a little discouraging, feeling like you are going it alone.
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It is contact with new people that reinforces the understanding that we are not the only ones in the CCHS boat.
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I have been very lucky to meet via the internet a few very cool moms that have kiddos with CCHS. It is an absolute blessing to know that these people are out there.
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This is Carmen. She only reinforces my theory that CCHS kids are cuter than the rest! Don't you just love her?
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I am glad that I have found her mom, Liz... hopefully we can meet at the next CCHS conference!