Monday, March 09, 2009

Welcome to Holland?

I received a call from the genetics department at my hospital. They need to see me ASAP because my blood work came back positive for Down's Syndrome. I have an amniocentesis on Wednesday. Yes, I know there are many false positives... but still, it gets a girl thinking...

This was passed along to me, I thought it was appropriate for this situation.

By Emily Perl Kingsley, 1987.

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......


When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.


So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met. It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away...because the loss of that dream is a very very significant loss. But...if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

4 comments:

Anonymous said...

I know that Italy is known for their fabulous leather shoes...but let's be honest there's just something special and magical...though slightly painful looking...about the clog! I'll take the trip with u wherever u land...I'm always in for a new language and I here there's hot men either place...wait u were using a metaphor....so there are no hot guys involved? I mean after u pop that thing out isn't it proper for u and it SIL to take a fabulous trip? Just a thought! Love u all...happy anniversary. Imagine seven years ago u had the worst MC a wedding has ever seen..I mean really remember her outfit? Remember matthew James and his john travolta moves! Love u! Good times!

K said...

Just a bit from my own personal pregnancy scare...I came back positive for the same. I was referred to a neonatal specialist who did a higher frequency ultrasound to rule out the physical factors that determine Down's. I was offered amnio afterwards but declined. Have you considered the ultrasound?

Jessica (Probst) Eveland said...

wow! Praying for peace for you.

Anonymous said...

i always appreciate your point of view. :) i will be thinking of you!
brook